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rare diseases
Health
‘Desperate for answers’: Thousands of people finally received diagnoses that had eluded them for years. Here’s how
BY
Erin Prater
Health
It takes an average of 8 years for a rare disease patient to get diagnosed. Why is it so hard to get life-altering genetic testing in the U.S.?
BY
Erin Prater
Health
Céline Dion was diagnosed with stiff-person syndrome. What to know about the rare neurological disorder forcing her to leave the stage
BY
Alexa Mikhail
Health
Parents are becoming drug developers to find a cure for their children’s rare diseases
BY
Jared Whitlock
and
Kaiser Health News
Health
Long COVID in kids is worrying the experts: ‘It affects everybody differently and at different timescales’
BY
David Meyer
Commentary
Cures for many rare diseases might already exist. Why aren’t we using them?
BY
Annette Bakker
Newsletters
The communities we forget during COVID-19
BY
Sy Mukherjee
Health
The coronavirus pandemic is impacting critical research into neuromuscular diseases
BY
Sy Mukherjee
Health
An FDA Program Incentivizing Rare Disease Drugs Will Be Investigated for Abuses
BY
Sy Mukherjee
Health
Martin Shkreli’s Former Company, Back in Business, Vows No Crazy Drug Prices
BY
Sy Mukherjee
International
Shire switches from target to predator with $5.2 billion NPS buy
BY
Geoffrey Smith
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Most Popular
Finance
The housing market is so broken that many 40- and 30-something millennials have no choice but to build homes in their...
BY
Jeff Kruth
,
Murali Paranandi
, and others
Features
Motorola ditched cell phones and found a lucrative second act. Now it’s one of tech’s biggest turnaround stories
BY
Stephen Gandel
Tech
Twitter cofounder Evan Williams says Elon Musk’s purchase of the company made him ‘sad’: ‘He’s brilliant. But no one’s...
BY
Chloe Taylor